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Table 2 Methods of implementation of service quality indicators

From: Quality indicators in headache care: an implementation study in six Italian specialist-care centres

Indicator

Measure

Means of enquiry

Domain A. Accurate diagnosis is essential for optimal headache care

 A1. Patients are asked about the temporal profile of their headaches

a) Duration of presenting complaint is recorded in patient’s record (yes/no)

Patients’ records

 A2. Diagnosis is according to current ICHD criteria

a) Diagnosis is recorded in patient’s record (yes/no)

Patients’ records

b) Diagnostic record uses ICHD terminology (yes/no)

 A3. A working diagnosis is made at the first visit

Working diagnosis at first visit is recorded in patient’s record (yes/no)

Patients’ records

 A4. A definitive diagnosis is made at first or subsequent visit

Definitive diagnosis is recorded in patient’s record or, if not, an appointment for review has been given (yes/no)

Patients’ records

 A5. Diagnosis is reviewed during later follow-up

Diagnostic review during follow-up is routinely undertaken (yes/no)

Physicians’ questionnaire

 A6. Diaries are used to support or confirm diagnosis

The service has a diagnostic diary available and physicians are aware of its availability (yes/no)

Physicians’ questionnaire

Domain B. Individualized management is essential for optimal headache care

 B1. Waiting-list times for appointments are related to urgency of need

a) Waiting-list times are recorded in database (yes/no)

Patients’ records

b) A formal triage system exists to expedite appointments in cases of perceived urgency (yes/no)

Physicians’ questionnaire

 B2. Sufficient time is allocated to each visit for the purpose of good management

a) Actual time (minutes) per visit is recorded by patient in exit questionnaire: 1st visits and follow-up visits

Patients’ questionnaire

b) Patient is satisfieda with actual time (yes/not yes)

Patients’ questionnaire

c) Health-care providers express overall satisfaction (yes/no)

Physicians’ and other HCPs’ questionnaires

 B3. Patients are asked about the temporal profile of their headaches

Frequency (or days/month) of symptoms is recorded in patient’s record (yes/no)

Patients’ records

 B4. Treatment plans follow evidence-based guidelines, reflecting diagnosis

Prescribed drugs (names, doses and quantities) are recorded in patient’s record

Patients’ records

 B5. Treatment plans include psychological approaches to therapy when appropriate

a) Access route to psychological therapies exists (yes/no)

Physicians’ questionnaire

b) Utilisation is recorded in patient’s record

Patients’ records

 B6. Treatment plans reflect disability assessment

a) An instrument for disability assessment is available(yes/no) and is appropriate in the setting (yes/no)

Physicians’ questionnaire

b) Disability is recorded in patient’s record (yes/no)

Patients’ records

 B7. Patients are followed up to ascertain optimal outcome

a) Follow-up appointment dates appear in central service records (yes/no)

Central service records

b) A follow-up diary and/or calendar is available (yes/no)

Physician’s questionnaire

Domain C. Appropriate referral pathways are essential for optimal headache care

 C1. Referral pathway is available from primary to specialist care

A usable pathway exists (yes/no)

Physicians’ questionnaire

 C2. Urgent referral pathway is available when necessary

A usable pathway exists (yes/no)

Physicians’ questionnaire

Domain D. Education of patients about their headaches and their management is essential for optimal headache care

 D1. Patients are given the information they need to understand their headache and its management

Patient is satisfieda with information given (yes/not yes)

Patients’ questionnaire

 D2. Patients are given appropriate reassurance

Patient is satisfieda with information given (yes/not yes)

Patients’ questionnaire

Domain E. Convenience and comfort are part of optimal headache care

 E1. The service environment is clean and comfortable

a) Patient is satisfieda with cleanliness and comfort (yes/not yes)

Patients’ questionnaire

b) Health-care providers are satisfied with cleanliness and comfort (yes/no)

Physicians’ and other HCPs’ questionnaires

 E2. The service is welcoming

Patient is satisfieda with welcome (yes/not yes)

Patients’ questionnaire

 E3. Waiting times in the clinic are acceptable

a) Waiting time (minutes) per visit is recorded by patient in exit questionnaire

Patients’ questionnaire

b) Patient is satisfieda with waiting time (yes/not yes)

Patients’ questionnaire

c) Health-care providers are satisfied with waiting times (yes/no)

Physicians’ and other HCPs’ questionnaires

Domain F. Achieving patient satisfaction is part of optimal headache care

 F1. Patients are satisfied with their management

Patient is satisfieda with overall management (yes/not yes)

Patients’ questionnaire

Domain G. Optimal headache care is efficient and equitable

 G1. Procedures are followed to ensure resources are not wasted

A protocol to limit wastage exists (yes/no)

Physicians’ questionnaire

 G2. Costs of the service are measured as part of a cost-effectiveness policy

A record of input costs exists (yes/no)

Physicians’ questionnaire

 G3. There is equal access to headache services for all who need it

A policy to ensure equal access exists (yes/no)

Physicians’ questionnaire

Domain H. Outcome assessment is essential in optimal headache care

 H1. Outcome measures are based on self-reported symptom burden (headache frequency, duration and intensity)

a) An outcome measure (HURT or similar) is available (yes/no)

Physicians’ questionnaire

b) Outcomes according to this measure are recorded in patient’s record (yes/no/not applicable)

Patients’ records

 H2. Outcome measures are based on self-reported disability burden

a) An outcome measure (HALT or similar) is available (yes/no)

Physicians’ questionnaire

b) Outcomes according to this measure are recorded in patient’s record (yes/no/not applicable)

Patients’ records

 H3. Outcome measures are based on self-reported quality of life

a) An outcome measure (WHOQoL or similar) is available (yes/no)

Physicians’ questionnaire

b) Outcomes according to this measure are recorded in patient’s record (yes/no/not applicable)

Patients’ records

Domain I. Optimal headache care is safe

 I1. Patients are not over-treatedb

Prescribed drugs (names, doses and quantities) are recorded in patient’s record (yes/no/not applicable)

Patients’ records

 I2. Systems are in place to be aware of serious adverse eventsC

a) Serious adverse events are recorded

Patients’ records

b) A protocol exists for reporting serious adverse events (yes/no)

Physicians’ questionnaire

  1. ICHD International Classification of Headache Disorders, HURT Headache Under-Response to Treatment questionnaire [13, 14], HALT Headache-Attributed Lost Time questionnaire [11], WHOQoL World Health Organization Quality of Life questionnaire [12]
  2. aPatients’ satisfaction was deduced from Likert scales, extending through the options (according to the question): “too little”, “about right”, “too much”; or “much too long”, “too long”, “reasonable”; or “very good”, “good”, “adequate”, “poor”, “very poor”. These were recoded as “yes” or “not yes” for analysis (“adequate” was coded as “yes”)
  3. bOver-treatment may mean excessive use of drugs presumed able to induce medication overuse headache, overdosage with potentially harmful drugs such as ergotamine or steroids, use of prophylactic drugs for occasional headache or the wrong diagnosis, use of non-evidence-based treatments that are improbably effective
  4. cSerious adverse events are those that cause death, are life-threatening, terminate or put at risk a pregnancy, or cause hospitalization, prolonged illness, disability and/or malignancy