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Table 8 PRO Scores by TN Attack Frequency

From: Burden of illness of trigeminal neuralgia among patients managed in a specialist center in England

  Pain
Measure Overall Any attacks in the past 4 weeks No TN in the past 4 weeks
Penn-FPS-R n = 127 n = 58 n = 68
Mean (SD) 22.0 (29.5) 39.1 (32.1) 7.6 (16.9)
Median (IQR) 8.0 (0.0, 36.0) 34.0 (10.0, 64.0) 0.0 (0.0, 9.5)
Min/Max 0.0/120.0 0.0/120.0 0.0/89.0
PGIC, n (%) n = 129 n = 59 n = 69
Very much improved 63 (49) 14 (24) 48 (70)
Much improved 39 (30) 26 (44) 13 (19)
Minimally improved 11 (9) 9 (15) 2 (3)
No change 6 (5) 2 (3) 4 (6)
Minimally worse 1 (1) 0 1 (1)
Much worse 5 (4) 4 (7) 1 (1)
Very much worse 4 (3) 4 (7) 0
BPI-SF (Intensity) n = 129 n = 59 n = 69
Mean (SD) 1.39 (1.77) 2.62 (1.89) 0.36 (0.67)
Median (IQR) 0.50 (0.0, 2.25) 2.50 (1.0, 4.3) 0.00 (0.0, 0.50)
Min/Max 0.0/7.8 0.0/7.8 0.0/2.5
BPI-SF (Interference) n = 129 n = 59 n = 69
Mean (SD) 1.05 (1.96) 2.10 (2.44) 0.18 (0.63)
Median (IQR) 0.00 (0.00, 1.14) 1.14 (0.00, 3.86) 0.00 (0.00, 0.00)
Min/Max 0.0/9.7 0.0/9.7 0.0/3.7
EQ-5D-5L -HUI UK weights n = 129 n = 59 n = 69
Mean (SD) 0.864 (0.2) 0.790 (0.2) 0.927 (0.2)
Median (IQR) 0.939 (0.816, 1.000) 0.841 (0.741, 0.939) 1.000 (0.924, 1.000)
Min/Max −0.075/1.000 0.049/1.000 −0.075/1.000
EQ-5D-5L-VAS n = 129 n = 59 n = 69
Mean (SD) 72.6 (25.2) 66.4 (24.3) 77.5 (24.9)
Median (IQR) 81.0 (55.0, 94.0) 70.0 (50.0, 88.0) 90.0 (68.0, 95.0)
Min/Max 10/100 13/100 10/100
HADS Anxiety n = 128 n = 58 n = 69
Mean (SD) 5.4 (4.3) 6.7 (4.6) 4.3 (3.8)
Median (IQR) 5.0 (2.0, 8.0) 6.0 (4.0, 10.0) 3.0 (1.0, 6.0)
Min/Max 0.0/21.0 0.0/21.0 0.0/15.0
HADS Depression n = 128 n = 58 n = 69
Mean (SD) 3.7 (3.8) 5.1 (5.4) 2.6 (3.0)
Median (IQR) 2.0 (1.0, 5.0) 4.0 (0.0, 9.0) 1.0 (0.0, 4.0)
Min/Max 0.0/19.0 0.0/19.0 0.0/13.0
  1. Note: in some cases component numbers may not add up to total number due to missing data