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Table 1 Parameters Collected in the Survey

From: My Migraine Voice survey: a global study of disease burden among individuals with migraine for whom preventive treatments have failed

Domain

Items

Sociodemographic characteristics

• Age

• Gender

• Income

• Place of living

• Occupation status

• Family status

Health/medical history

• Monthly migraine days

• Monthly headache days

• Characteristics of migraine (eg, symptoms, pain, nausea, aura, duration)

• Medication history

• Migraine history (eg, time affected by migraine, diagnosis, time since diagnosis, engagement with HCPs)

• Family history of migraine and headache (parents, siblings, children)

• Comorbidities (chronic conditions)

QoL

• QoL

• Experience of living with migraine (eg, fear of migraine attack, ability to focus, fatigue, feelings of frustration/hopelessness)

Healthcare utilization

• Healthcare utilization (eg, hospitalizations, ED visits, outpatient visits, general practitioners, neurologists, headache centers, brain scans)

• Treatments for relief of headache/migraine

• Treatments for prevention of headache/migraine

• Non-pharmacological management

Impact on daily life

• Work status (including changes in employment due to migraine)

• Daily activities and household activities

• Work productivity using WPAI-Migraine

Treatment patterns/ participants’ treatment experience

• Time on treatment

• Treatment satisfaction

• Reason for switching (if any)

  1. ED Emergency department; HCP Healthcare provider; QoL Quality of life; WPAI Work Productivity and Activity Impairment