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Table 2 Questions on interictal and cumulative burdens attributable to headache

From: Interictal burden attributable to episodic headache: findings from the Eurolight project

Domain of enquiry

Question

Response options (optimum response first)

Symptoms in the interictal period (questions specifically about the last day when the respondent did not have a headache)

On that day, were you anxious or worried about your next headache episode?

no; yes

On that day, was there anything you could not do or did not do because you wanted to avoid getting a headache?

no; yes

On that day, did you feel completely free from all headache-related symptoms?

yes; no

Control of headaches

Taking into account everything you do to treat your headaches, do you feel you are in control of your headaches?

always; often; sometimes; rarely; never

Stigma and social isolation

Do you avoid telling people that you have headaches?

no; yes

Do you feel that your family and friends understand and accept your headaches?

yes; no

Do you feel that your employer and work colleagues understand and accept your headaches?

yes; no

Cumulative burdens

Have your headaches interfered with your education?

no;

(multiple response options possible)

yes, I did less well;

yes, I gave up early

Do you believe your headaches have made you less successful in your career?

no;

(multiple response options possible)

yes, I have done less well;

yes, I have taken an easier job;

yes, I have taken long-term sick leave;

yes, I have retired early;

yes, I am on a disability pension

Have your headaches affected your family planning?

no;

yes, I have had fewer children;

yes, I have avoided having children

During the last 3 months, have your headaches caused difficulties in your love life?

no; yes

Have your headaches caused a relationship to break down?

no;

yes, they have caused separation;

yes, they have caused divorce