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Table 1 Changes in the Hindi version of the HARDSHIP questionnaire made prior to the main study

From: The burden of headache disorders in North India: methodology, and validation of a Hindi version of the HARDSHIP questionnaire, for a community-based survey in Delhi and national capital territory region

Change

Rationale

The response option “pricking/other” to the question on headache character was removed

This was an option in the Karnataka study [22], but not well understood by our participants, and not helpful to diagnosis

The response option “throbbing” to the question on headache character needed supplementary explanation in Hindi

This term was not well understood by our participants, but important to diagnosis

The question on headache intensity, which required evaluation against a 3-point verbal rating scale (VRS) (1: mild; 2: moderate; 3: severe), was supplemented with a 10-cm visual analogue scale (VAS)

It was easier for illiterate rural participants to describe the severity of headache on the VAS, and it validated the 3-point VRS

Modifications were made in the standardized health-care utilization section

Questions about professional consultation and investigations required adaptation to local practices

The willingness-to-pay question series was rephrased in Hindi, with the explanation that this was a hypothetical enquiry. Additionally, the interviewer first asked an open-ended question (“How much would you pay …?”). Only when a participant could not answer this was the bidding-game method employed, commencing with the modest sum of INR 2,500

Most participants found the open-ended question easier to respond to, and asking it first was time saving